Eric and I found out yesterday that Lila Grace has a congenital heart defect. It's called Total Anomalous Pulmonary Venous Return. It's really hard to explain exactly what it is...I'm still really confused. Here's a link talking about it www.cincinnatichildrens.org/health/heart-encyclopedia/anomalies/tapvr.htm. Basically her heart is not functioning correctly to provide enough oxygen for her body. She can't live with this condition and is in need of surgery soon. If it went undetected and un repaired she could have congestive heart failure. Please know she is not in any immediate danger. They put her on 2 medicines to help her in the mean time. Eric and I had no idea as she is a happy healthy baby. Our pediatrician detected a heart murmur at some of her appointments and suggested we see a specialist, but she thought it was, "no big deal". So you can imagine our shock after seeing the specialist. The pediatric cardiologist said it's a very rare condition.
The silver lining in this is after Lila Grace has the surgery she will be "fixed" for the rest of her life. Her surgery has been scheduled for June 29th. It is open heart surgery. She will undergo 6 hours of surgery and then spend a week in ICU. Please keep her and us in your thoughts and prayers.
You are in our thoughts and prayers Fortner family! We love you guys so much!!
ReplyDeletelove, Megan and Rick